I live to garden. It is by far my favorite hobby. I find it utterly satisfing to transform dull and empty spaces into a small oasis for human/animal consumption. That consumption can be in the form of sensory experiences through sight, smell and touch or in the form of literal feeding, herbs for the humansContinue reading “A Friend On The Other Side…”
Tag Archives: Brain tumor
Pandemic
I have been wanting to write for weeks, but I have been wordless. Literally wordless. Waking each morning, making my way through the days falling asleep at night, and not feeling like any of it really happened the next morning when I arise and do it all over again. I feel like I am livingContinue reading “Pandemic”
This girl needs a vacation from life.
Many months before I got my diagnosis I had planned a romantic getaway for my husband and I to Costa Rica. We are not really resort kind of people so we chose to go to the less developed part of the country on the Caribbean coast, staying at a treehouse that I found through Airbnb.Continue reading “This girl needs a vacation from life.”
Love đź’•
Today is Valentines Day, I can’t think of a better day to ponder those we love and what they mean to us (except maybe every day if you are into mindfulness, lol)! From the day that this all began for me I have been shown nothing but love from everyone I know and care about.Continue reading “Love đź’•”
Johns Hopkins (Baltimore)
This was the last visit for opinions. We have already visited the 10th ranked hospital in the country (Cleveland Clinic) and the 4th (NY Presbyterian) and today was reserved for the best in the country. Saving the best for last! We met with Dr. L who is a neurosurgeon and happens to be running aContinue reading “Johns Hopkins (Baltimore)”
NY Presbyterian
Today is the day I have been waiting for. My husband and I woke up at 3 am to catch the first flight out of Buffalo into New York City. I was equal parts nervous and excited. I can’t explain why but I was putting extra weight on what the doctors at NYC had toContinue reading “NY Presbyterian”
The Art of Racing in the Rain
Last night I took a wonderfully relaxing restorative yoga class, complete with candles and chanting music, it was lovely. When I arrived home my very adoring husband met me in the driveway and said “Come on let’s go to the movie store and get a rom/com”. Huh? A rom/com? Really? “Yes, you like those”, heContinue reading “The Art of Racing in the Rain”
Ritual
I woke up this morning feeling very peaceful, who knows why, but I’m not arguing when it happens. When I have moments of peace I just drink it up like my favorite chai tea. I sat on my couch for about an hour and watched the snow falling from the sky, watching the squirrels runningContinue reading “Ritual”
Pick a Tumor, Any Tumor…
Today was the first visit with a neuro-oncologist. Another doctor, another opinion on what kind of tumor it is. Today’s vocabulary lesson was the word astrocytoma. A quick internet search and I’m now more confused than ever. https://abta.org/tumor_types/astrocytoma/ So basically subependymomas are a type of ependymoma. Astrocytomas are a type of glioma. All of theseContinue reading “Pick a Tumor, Any Tumor…”
Down with New Year Resolutions
I have never liked New Years. In the beginning my dislike stemmed from a place of disappointment. I was a soap opera watching tween/teen and when I attended parties on New Years it was never like it was portrayed on television. No one was dressed as fancy, the ambiance was dull, it just never metContinue reading “Down with New Year Resolutions”