Today is Valentines Day, I can’t think of a better day to ponder those we love and what they mean to us (except maybe every day if you are into mindfulness, lol)! From the day that this all began for me I have been shown nothing but love from everyone I know and care about.Continue reading “Love đź’•”
Author Archives: evictingroxanne
Johns Hopkins (Baltimore)
This was the last visit for opinions. We have already visited the 10th ranked hospital in the country (Cleveland Clinic) and the 4th (NY Presbyterian) and today was reserved for the best in the country. Saving the best for last! We met with Dr. L who is a neurosurgeon and happens to be running aContinue reading “Johns Hopkins (Baltimore)”
NY Presbyterian
Today is the day I have been waiting for. My husband and I woke up at 3 am to catch the first flight out of Buffalo into New York City. I was equal parts nervous and excited. I can’t explain why but I was putting extra weight on what the doctors at NYC had toContinue reading “NY Presbyterian”
The Art of Racing in the Rain
Last night I took a wonderfully relaxing restorative yoga class, complete with candles and chanting music, it was lovely. When I arrived home my very adoring husband met me in the driveway and said “Come on let’s go to the movie store and get a rom/com”. Huh? A rom/com? Really? “Yes, you like those”, heContinue reading “The Art of Racing in the Rain”
Cleveland Clinic
Today we met with a neurosurgeon who specializes in posterior fossa tumors. We were finally able to actually see my original MRI. Sadly because Dent was unable to do their jobs correctly, the disk was empty that was supposed to contain the most recent MRI with contrast (insert many swear words here). Perhaps this isContinue reading “Cleveland Clinic”
Jumping to Conclusions
Its been a rough week mentally for me. On Wednesday I went to my local hospital and tried to get a copy of an old CT scan from 9 years ago. Both doctors here in Buffalo had asked me if I had ever had a previous MRI at any point in my life. They bothContinue reading “Jumping to Conclusions”
Gratitude
Today my spirit is overflowing with gratitude. I feel so lucky to have so many people in my life that care about me and have gone out of their way to help ensure that I end up in the hands of a skilled neurosurgeon. We live in a time where the word privilege is thrownContinue reading “Gratitude”
Searching…
I heard back from Roswell. Their advice was to do nothing for now and rescan me in three months. Apparently when my MRI was put up on the screen at the tumor board there was resounding agreement that my tumor was a subependymoma. Here’s the thing, I’ve been doing a lot of reading, and thisContinue reading “Searching…”
Worry
As you can imagine I get a lot of well intended advice at this point on my journey. Most notably “try not to worry”. That flies off the tip of peoples tongues without a hesitation of what they are actually saying. Worry by definition is “a worried condition or feeling; uneasiness or anxiety”. Anxiety by definition is “distress or uneasiness ofContinue reading “Worry”
Ritual
I woke up this morning feeling very peaceful, who knows why, but I’m not arguing when it happens. When I have moments of peace I just drink it up like my favorite chai tea. I sat on my couch for about an hour and watched the snow falling from the sky, watching the squirrels runningContinue reading “Ritual”