Johns Hopkins (Baltimore)

This was the last visit for opinions. We have already visited the 10th ranked hospital in the country (Cleveland Clinic) and the 4th (NY Presbyterian) and today was reserved for the best in the country. Saving the best for last! We met with Dr. L who is a neurosurgeon and happens to be running aContinue reading “Johns Hopkins (Baltimore)”

The Art of Racing in the Rain

Last night I took a wonderfully relaxing restorative yoga class, complete with candles and chanting music, it was lovely. When I arrived home my very adoring husband met me in the driveway and said “Come on let’s go to the movie store and get a rom/com”. Huh? A rom/com? Really? “Yes, you like those”, heContinue reading “The Art of Racing in the Rain”

Worry

As you can imagine I get a lot of well intended advice at this point on my journey. Most notably “try not to worry”. That flies off the tip of peoples tongues without a hesitation of what they are actually saying. Worry by definition is “a worried condition or feeling; uneasiness or anxiety”. Anxiety by definition is “distress or uneasiness ofContinue reading “Worry”

Pick a Tumor, Any Tumor…

Today was the first visit with a neuro-oncologist. Another doctor, another opinion on what kind of tumor it is. Today’s vocabulary lesson was the word astrocytoma. A quick internet search and I’m now more confused than ever. https://abta.org/tumor_types/astrocytoma/ So basically subependymomas are a type of ependymoma. Astrocytomas are a type of glioma. All of theseContinue reading “Pick a Tumor, Any Tumor…”